A piece of proposed legislation inspired by a Bristol Township youngster battling a degenerative disease is expected to pass into law very soon after a vote of approval by the state Senate.
The bill, which passed through the state Senate on Wednesday afternoon with unanimous support, has already received the support of Governor Tom Corbett. The bill is commonly known as “Hannah’s Law.”
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“I couldn’t stop crying, it’s the best news we received in a while,” said Vicki Pizullo, Hannah Ginion’s mother.
“Hannah will be a hero,” said Pizullo. “It’s an amazing feeling because Hannah will always be a hero; her name will never be forgotten,” said Pizullo.
Baby Hannah suffers from Krabbe disease, a degenerative disease for which there is no cure. According to Mayoclinic.org, Krabbe disease affects about one in 100,000 people in the United States.
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“Hannah’s Law” will include prenatal screenings Krabbe disease, as well as other degenerative diseases.
Once the bill is signed into law by Corbett, Pennsylvania will become only the sixth state to require screenings for Krabbe disease in prenatal screenings.
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“I just think it is amazing, so no other families will have to endure what we [endure] do everyday,” explained Pizullo.
Support for little Hannah, who is 20 months old, is strong. Some of the Hope for Hannah page’s 60,000 Facebook followers contacted lawmakers and urged them to support the bill.
