Neshaminy High School looked like rainbow on Saturday.
A group of teenagers gathered to raise awareness and money to fight Glut1 DS at “Color Fest.” The event was hosted by the Neshaminy High School Interact Club, led by English teacher Suzi Drake.
Advertisements
“I think this is great, this event cane from the kids,” Drake explained. The students first wanted to have a color run, but due to the scale that would have been necessary, the club opted for the Color Fest, which included a moon bounce, dancing, a DJ and yoga at regular intervals throughout the day.
Drake said the event’s goal was to raise awareness and also collection a donation to put toward the fight against Glut 1 DS.
Herbert Hoover Elementary School second grader Gracie Martens and her mother Joanna Snyder were also at Color Fest. Gracie was the 86th person ever diagnosed with the disease, was first diagnosed at 22 months old and has been fighting symptoms of the disease ever since. Before being diagnosed, Gracie started having myoclonic jerks at only two months old, where she suffered from hundreds of daily seizures, low muscle tone and even developmental delays.
Advertisements
The event had a total of 75 registered participants and 11 vendors, according to Drake. “The Interact Club will be making a donation in the amount of at least $1,077 to the Glut1DS Foundation in honor of Gracie Martens and the spirit of all the fantastic Glut1 kids who smile in spite of their difficulties,” Drake said.
“We need to find a cure for this disorder,” said Snyder. “It’s pretty involved and it’s not something that’s going to go away.”
Advertisements
